to commit to memory

My life with PCOS.

BTV November 13, 2008

Filed under: Uncategorized — tocommittomemory @ 5:54 pm
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   This is a 10 day sample of what its like to live in my head.

brainwaves

   If my brain were a TV channel, it would be BTV: All Babies, All The Time.  Between episodes of Deliver Me, A Baby Story, and Jon and Kate, we have infomercials for kitchen products and money-making schemes.  We also occasionally have an episode of Glenn Beck or Anderson Cooper, just to keep in touch with the real world.  We have commercials for Pampers, Baby Einstein, and Fisher-Price, as well as those drugs that are supposed to help dampen chemo symptoms.  Those The More You Know commercials feature advice such as raise your hips after sex and dollar store HPTs are often more sensitive than digital.  We show the same after-school movie every day, and its always 15 and Pregnant.  If youre up peeing on a stick at 4 in the morning just to capture that precious FMU, you might be lucky enough to catch an airing of Juno or Knocked Up.  There are Weight Watchers commercials and episodes of Lost and Family Guy and Six Feet Under (usually the one where the baby dies of SIDS).  And around dinner time every day there are episodes of Americas Test Kitchen and Good Eats, followed by that mystery diagnosis show, that crazy Duggar family, and Nanny 911.  Its a nice channel to watch.  There are a lot of laughs, some good food, and a reason to cry at least once a day.

 

The Crazy is Creeping In November 11, 2008

Filed under: Uncategorized — tocommittomemory @ 4:36 pm
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   For 10 months now Ive been taking my temperature every morning upon waking.  It doesnt get old.  In fact, it helps me wake up in the morning.  In talking to a coworker about it earlier today, she told me that when she was TTC, she only got through about a month and a half before giving up out of annoyance and boredom.  I cant help but wonder if thats what contributed to it taking her 3+ years to conceive despite everything being in seemingly perfect health.

   I keep my thermometer in a mug on my nightstand.  Also in this mug is loose change, nail clippers, a few gum wrappers, and some earplugs.  My alarm goes off and instead of reaching for the snooze button I reach for the thermometer.  I never have a problem remembering it so I can later (once at work) enter it into the myriad of different programs and websites I use to keep track of all things cycle-related.

   Im currently on cycle day 31, and a full 22 days past what looks like ovulation.  However, despite whatever symptoms I might be having, every single stick I pee on is negative.  All seven of them, of differing varieties.  I guess my current plan is to wait a few more days, and if theres still nothing in the way of a positive test or a period or even a temp-drop, Ill call my doctor and ask for a blood test.

   Im having a difficult time even believing that my body has done something normal.  But it definitely looks like a clear thermal shift, and I have to hope my doctor (ob/gyn or RE, either one) would see the same thing.

   You know, I could keep taking my temp every day for the rest of my life and not be too bothered by it.  Its the waiting between each temp-taking thats annoying.  I obsess and over-analyze every little thing, then do myself no favors by looking stuff up online to fit my circumstances for exactly what I want to see.  Paul sees the tests piling up in the garbage and just says nothing yet? and gives me a hug.  He ignores my hours online pouring over pregnancy test photos and temp charts, and the stack of books on my side of the bed (Taking Charge of Your Fertility, What to Expect When Youre Expecting, among others).  And although hes a little worried he might get laid off, and the economy sucks, and it will be at least another year before we can buy a house, he hasnt even started to say that maybe we should hold off trying right now.  And god do I love him for that.

   Im starting to get antsy for results.  If it turns out that I havent actually ovulated, I want another provera prescription so I can start again.  And Im thinking about making an appointment with my RE, not for PCOS maintenance like Ive been going to her for, but for actual fertility treatment, if shell have me.  Im worried that shell not want to treat me yet because weve technically only been trying for a couple months.  However, how can we even try when Im not ovulating?  Part of me wants to march in there and demand Clomid or Femara so we can actually start trying.

   I need to lose weight.  I know that.  I know that it will help with so many things, not the least of which is my cycles.  But I just cant seem to get off my ass and do it.  If there were any motivator that would actually work, I always thought this would be it.  Part of me has always thought that one of the reasons I hold on to my weight is because it protects me.  Maybe Im holding on to my weight now because Im scared to be a mother, and subconsciously not ready.  But thats just crazy, because I know beyond a doubt that Im ready.  So why wont I put down the effing ice cream and get my ass off the couch?

 

Women’s Studies October 29, 2008

Filed under: Uncategorized — tocommittomemory @ 4:46 pm
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   As I step a little more every day into this land of infertility, I come to realize that, as fearful as I am that I will never have a (biologically-related) child of my own, I am almost equally as fearful that I will.

   Baby fever struck me early, about the time I hit puberty.  It was like: get a training bra, start my period, start looking for a husband so I can have a baby.  In truth, there was never a time when I didnt want children in my life.  My Barbies always had babies.  When we played house I was always the mom.  When we played school, I was the dowdy teacher with 4 kids of her own at home.  When we played royalty, I was always the queen, never the princess; the queen had more power and got to have babies!  It has always been a part of me and how I shape my life.  And considering Ive felt this way most (all?) of my life, I think Ive been pretty patient to have waited this long (not that I necessarily had a choice, I now realize).

   In college as I delved in to womens studies courses, I started to feel guilty about my desire to be a mother.  After all, why would I want to be in the kitchen, barefoot and pregnant, when I could be out writing novels and traveling the world and falling in love with hundreds of beautiful foreign intelligent men (and women)?  But then it struck me, an epiphany like no other: the whole point of womens studies was equality, and women (and men) being able to do whatever the hell they want, regardless.  It means having the freedom and opportunity to be a rodeo clown or the president or even (gasp!) a parent.  So now, I embrace the idea of being in the kitchen, barefoot and pregnant.  There is nothing else in the world I want more.  It is a strong, noble, brave, and honest life ambition.

   But (BUT!) the closer I get to being pregnant (ha!), the more my fear creeps up, a little about whether Ill be a good mom, a little about how well afford it (never mind the lay-off talks going on at my husbands place of employment), but mostly but actually being pregnant.  The odds of me being a gigantic, miserably uncomfortable, unable-to-fit-in-my-car, gestationally diabetic, yet still unnervingly happy pregnant woman from, oh, about day 3, are pretty good.  The thought of my ligaments loosening and stretching in ungodly ways make me queasy, and I cant even begin to fathom just how big my boobs will actually get.  Is there some website out there specializing in plus-size porn stars expecting babies?  Maybe thats where Ill be able to find a bra that will fit me.

   At the end, however, theres always that sweet whisper of a real, live, take-home baby.  A whisper that Im convinced is a promise and I will be let down if it never happens.  Bone-crushingly disappointed (and thats an understatement).  But that whisper is enough to make all of it worthwhile, something Im fortunate enough to know at least a little now, although from what Ive been told, Ill realize only later just how worth it everything will be.

 

Pantry Soup October 13, 2008

Filed under: Uncategorized — tocommittomemory @ 10:54 am
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   I guess I havent written lately.  I think I just needed time to process everything.  I kept thinking about writing, but could never muster up a coherent post while on a computer (which is to say, about 13 hours a day).

 

   The appointment with my RE went well, I think.  She upped my dosage of metformin to 2000mg a day, so Im crossing my fingers that does something.  She also gave me provera (after I asked) to induce a period, which started yesterday.  Im not sure why I miss them so much when I dont have them; they suck.  And if we werent trying to get me pregnant, Id be happy with, oh, about 2 a year, just for safetys sake.  Also, she told me that I can move to the next step (Clomid) whenever I want, but would like me to give the upped dosage at least 3-6 months to see how it works, if at all.  At this point I’m planning to wait about 3 months, until the first of the year.

 

   My grandmothers appointment with the team of doctors went okay, all things considering.  Shes been officially diagnosed with Stage IV lung cancer thats metastasized to the mediastic lymph nodes and brain.  Its incurable, and they said that shes got 9-12 months to live, maybe up to 24 months with treatment.  Treatment includes surgery to remove the brain tumor (where all of her symptoms are coming from), radiation to the brain, and chemo/radiation combo for the lung and lymph nodes.  The brain surgery is today.  In fact, Im thinking theyre probably cutting into her skull right about now.  It gives me the heebie-jeebies and makes me nauseous to think about it.

 

   Works been okay.  I alternate between being super-productive, or a big lump of worthlessness.  It all depends on my mood.

 

   My Moms birthday is Sunday, and Paul and I are hosting lunch Sunday for my parents, my grandparents, and maybe my brother.  Im greatly looking forward to having everyone over.  My grandparents havent seen our new apartment, and now that we have a dining room, it should be much better than Moms birthday last year, when we were all (9 of us) crammed in our small living room eating tacos off our laps.  This year were making lemon roast chicken and gravy, browned butter mashed potatoes, green bean casserole (from scratch!), and corn (for Dad).  Im also making my famous Loaded Carrot Cake with cream cheese icing (also from scratch), and some sort of chcocolatey thing (maybe pots de chocolate?) for Dad and Paul, who dont like carrot cake.  I was also thinking I would make a couple raspberry pies, one for Paul and me (its my favorite) and one to send home with Grammy (her favorite, too).  Hey, maybe Ill post my recipes!

 

   Ive been on a soup-making bend lately.  Vats of home-made chicken stock.  Chicken noodle made from leftovers.  Creamy tomato soup from scratch.  Pantry Mexican soup.  Next is chili.  They all get packaged into individual servings and stuck in the freezer for lunches.  Maybe Ill post those recipes too.  Can you tell I tend to cook when stressed?

 

all-you-can-eat buffet September 30, 2008

Filed under: Uncategorized — tocommittomemory @ 1:26 pm
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   Theres a certain art form in the all you can eat buffet.  Whether its Chinese or all-American, the objective is the same: load as much as you can on one plate the first trip through; pot stickers on top of rice on top of General Tsos, next to teriyaki chicken and chicken fingers and spicy broccoli.  Forget the fact that you can go back up as many times as you want; that first plate is the most important, a source of pride.

   Im used to carrying around a relatively small plate.  Chicken fingers and pot stickers, max.  However, recently Ive been expected to also pile some fried rice on to that plate.  Luckily, rice is small and can filter down into all the nooks and crannies between the chicken.  But when I was asked to include some sushi, it went rolling all over and on to the floor, a huge mess.  Luckily someone also then handed me a bigger plate.  This ones the size of a turkey platter and it can hold a lot, but it gets awful heavy.  And I know that someday, it will be too full and someone will break out the pizza pan-sized plate and expect me to be able to handle it.  I just have to hope that someone else will be there to help me carry it.

 

   Okay, so Ive probably taken that metaphor as far as it will go.  My point is this: I have a lot on my mental/emotional plate right now.  The everyday, not-so-stressful stresses like marriage, family, and work have been expanded upon.  Marriage now includes not just trying to get pregnant, but infertility.  Family includes a grandmother with advanced metastatic cancer.  And work includes a handful of people who think I dont know how to do my job.  Luckily I have a husband who is supportive and willing to do what he can to help carry the load.  Sometimes I just wish he (or anyone!) would carry all of it, which I realize is completely unfair, because he has is own load to carry.

 

   Tomorrow I have an appointment with my RE, a follow-up to see how Im responding to the Metformin.  I have a list of questions as long as my arm about what the next steps will be, and Im actually pretty anxious about the whole thing.  It doesnt seem that Im ovulating on Met, and Im afraid shell want to wait another 3 months or so before taking the next step (Clomid).  Im hoping shell at least give me some Provera so I can start a fresh cycle, as Im currently on day 49.

   Tomorrow is also my grandmothers appointment with her team of doctors.  The oncologists and brain surgeons will tell her exactly what she has and give her treatment options, if there are any.  Id say 80% of my current stress is about that.  I just dont know what well do if there are no treatment options.

   So today when my coworker decided to have an attitude with me, I lost my shit.  Now were both just plugging away, trying to avoid confrontation as much as possible.  Sometimes you just need to have some time to yourself (even if its only so you dont kill someone).

 

Yoda was wrong. September 2, 2008

Filed under: Uncategorized — tocommittomemory @ 10:33 am
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   Its the beginning of September, and the summer breezes are turning a little cooler.  The maple tree out our bedroom window is starting to blaze orange, a full month ahead of the others, same as every year.  Our tomatoes are finally growing fat and red, and the lettuce is growing like its possessed.  I love this time of year, which is why we were married in September.

   But the only thing on my mind lately is that we are now officially trying to have a baby.  I find myself caught in daydreams about peeing on sticks, telling my parents, hearing the heartbeat, picking out names, and holding that baby for the first time.  Im disgustingly optimistic, given my quasi-infertility. 

   Paul has new questions and concerns every day, and I answer them the best I can.  What I dont tell him is that, however excited I am to have a baby, Im pretty afraid of being pregnant.  From everything I read, it doesnt sound like its too much fun.  One day, Im ecstatic and cant wait, looking at maternity clothes online and picturing what it will be like to be a beached whale in my own bed.  The next day, I think about the morning sickness and the hemorrhoids and how Ill likely develop gestational diabetes.  But none of it matters, because the end justifies the means, and Id gladly suffer through 9 months of morning sickness and hemorrhoids if it means a take-home baby.  But ask me about that again when Im 6 months pregnant.

   So yes, we are now officially trying.  For my next trick, I will attempt to have a normal cycle.

 

All-Day Good-Time Pityfest, 1st annual August 20, 2008

Filed under: Uncategorized — tocommittomemory @ 2:14 pm
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   Im feeling very sad today.  I cried on the way to work, and feel like crying now, although Im at work so its not exactly practical.  Im feeling frustrated and alone.  I dont know where to go next.  What I thought was my period the other day was really just spotting for a couple days, and my temps are still up, and I get to stare at a fresh BFN every morning.  I dont know if I ovulated two weeks ago or not.  Probably not.  Were officially starting to try in a couple weeks, and I really wish I could just take some Provera and start a fresh cycle.  But I dont have an another appointment with my RE for 6 weeks, and I dont think my PCP will give me anything now that shes passed me on to the RE.

Im so ready for a baby, so ready to be pregnant, so ready to just try.  But how do I know when to try when I keep looking like Im about to ovulate, then my temp goes up for a couple days so it looks like I did ovulate, but then my temps go back down?  Over and over again this happens.  Maybe well set up a plan of sex every other or every third day, and not beat ourselves up if we skip a day here or there.  I figure if we can get into a groove like that, were covering the bases.  Assuming I will ever ovulate.

   And of course assuming we have no other problems.  Im considering asking the RE when I go back in October if we should go ahead and have the other basic tests done (sperm analysis, HSG, etc) so we can get them out of the way, but she probably wont yet because were so young and have so much time.  Shell probably want me to be ovulating and us trying for at least 6 months before she requests those tests.

   And how long before she wants us to try Clomid?  Will she order the tests before prescribing Clomid?  When I saw her before, she made it sound like shed start me on it as soon as I lost 5-10% of my weight.  But Im not sure I want Clomid, mostly because of the risk of multiples.  Id love it if we could do this on our own, with only the metformin.  It seems like Clomid is just thrown around all willy-nilly to anyone whos having the slightest problem conceiving, like its an easy fix.  But I know how crazy my Mom got on Clomid, and Im not sure my husband could handle me like that.

   The other issue is the weight.  Ive always struggled with losing weight, but I thought that as soon as something was seriously threatened, such as my health or my fertility, Id be able to get my ass in gear and lose the weight.  But Im finding thats not the case.  Ive lost about 7 pounds since starting the metformin about a month ago, and Im not really putting any effort into it.  I know that if I tried, even a little, I could lose more.  Id love to lose at least 5% (17 pounds) by the time I go back to my RE, but I just cant seem to get off the couch in the evenings to walk, or to give up the ice cream.

   So Im sad, and frustrated, and confused.  Im also lazy and impatient, but thats nothing new.  I cant wait until I can go home and get a big hug from Paul, and from the kittens.

 

Good-bye, my (not so secret) love… July 22, 2008

Filed under: Uncategorized — tocommittomemory @ 2:26 pm
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   I had my appointment with the Reproductive Endocrinologist yesterday.  My mom went with me, because shes been through this all before, and Paul cant take a lot of time off work right now (and he wouldnt have been much help anyways).  The RE was great; she was very nice and listened to my questions.  Her big thing was that I need to lose weight, at least 10%, but she was sure to say how she knew it was difficult because of the insulin resistance.  She asked if I was interested in metformin despite the side effects (diarrhea, loss of appetite, indigestion), and I said yes.  So she prescribed that, which I started this morning.  I am to start with one pill in the morning for 5 days, then add a second pill in the evenings for another 5-7 days, then a 3rd pill if I can tolerate it.  Ill let you know how it goes.  She also wants me to get bloodwork done in about 6 weeks to check my liver and kidney function, because a serious side effect is lactic acidosis.

   Step 2 is that she referred me to a nutritionist who specializes in diabetes, PCOS, and insulin resistance.  I need to find out tonight if my insurance will cover it, but I think Ill go at least once to see what she has to say, even if I have to pay for it myself.  Im sure shell tell me to cut out refined carbs, and eat a lot more whole grains, fruits, and veggies.  I love refined carbs.  I mean, if my husband hadnt come along when he had, I might have MARRIED refined carbs.  Im eating chocolate covered pretzels as I write this.  It will be sad, so very sad.

   Another suggestion she had was gastric bypass surgery.  She encouraged me to do some research on it and think about it.  My first instinct is no.  I mean, Ive thought about it before.  Im sure anyone whos even slightly overweight has thought about it.  But I know that its no easier (probably even harder) than traditional weight loss, and there are the risks, plus Id be so afraid that Id lose all the weight only to gain it all back again in a couple years.  Also, she told me that its about a 6 month process before the surgery (counseling, dieting, etc), and then they recommend people wait at least a year, preferably two, before trying to conceive.  That would mean I would be 30 before we could even TTC, which is heartbreaking to me, to not even have a chance until then.

   So my plan is to take the metformin unless it kills me, and try desperately to eat better and exercise some more.  Wish me luck.

 

And the winner is… July 8, 2008

Filed under: Uncategorized — tocommittomemory @ 3:44 pm
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   Last Tuesday I had an appointment with my doctor to go over my bloodwork results.  The progesterone levels indicated that I hadnt ovulated, and were actually a little low even for that.  She said I might need to supplement with progesterone when I do get pregnant.

   Almost everything else was okay, including my cholesterol, prolactin, and thyroid levels.  What wasnt okay was my insulin.  I was showing as slightly insulin-resistant, which is a big marker for PCOS.  And while she never used the term PCOS herself, she didnt disagree with me when I brought it up, and said she wanted to start me on metformin because most women get pregnant within a couple months of starting it, and refer me to a RE.  When I told her that we werent technically TTC until September, she changed her mind.  Instead, she referred me straight to a RE at the big hospital.  That appointment is now scheduled for 2 weeks from today.

   The receptionist at the REs office was confused as to why I was coming in, so I had to explain everything to her, even though I was at work.  I thought my doctors office was supposed to include that information in the referral paperwork?

   So now I have the appointment to look forward to, and dont have much idea what to expect.  Maybe an ultrasound?  Probably a metformin prescription?

   The reason it took me so long to post was that I was trying to process this information.  Ive suspected PCOS for about a year now (which was why I went off the Pill so early before TCC), but its different to pretty much know thats whats wrong with me.  Ive been pretty touchy this whole week, falling to tears with barely a nudge.  My mom has been too.  She said she just wishes that I didnt have to go through this.  She did, and it sucked, and even though its come a long way since then, its still not good.

   I sat down with Paul and explained the situation.  His first comment was how can the ovaries cause all that damage?  I explained that the ovaries were really just a side-effect, and gave him definitions on insulin-resistance, diabetes, etc, and told him about metformin and Clomid and such.  He seemed to understand, but I know he doesnt understand the seriousness of it, although he did ask about long-term effects (diabetes, heart disease, high cholesterol, cancer), so that was nice of him.  Im pretty sure he still thinks getting pregnant will be as easy as unprotected sex at the right moment.  And it could be.  The problem is getting that right moment, because Im not ovulating.

 

What next? June 10, 2008

Filed under: Uncategorized — tocommittomemory @ 2:25 pm
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In late December, I told my husband I was going off birth control pills, in an attempt to regulate my body before we starting trying.  I started charting my temps in an effort to learn my body.  In that time, Ive ovulated once, maybe twice.  Or maybe not at all.  My first cycle was over 80 days, finally ended by Provera.  My second cycle, where Im pretty sure I ovulated (on day 13), was finally ended with Provera after 55 days.  Im on cycle 3, and might have ovulated over the weekend, but Im not sure.  Im having blood work done on Monday to check my progesterone and other hormone levels, and I have no idea what to expect.

My Mom was told at 19 that she was infertile, because of what has now been determined to be Polycystic Ovarian Syndrome (PCOS).  I was a fluke pregnancy, and after I was born my Mom tried Clomid and other drugs to have another baby, to no avail.  My brother was another fluke pregnancy, 7 years after me.

I worry that I have PCOS, because it can be hereditary, and because I have a few symptoms, such as being overweight.  But I feel a little better knowing that I could take Metformin and might have some hope.  I guess if the blood work finds that Im not ovulating, the next step might be Provera again and then day 3 blood work?  I have no idea.  Were not even trying to get pregnant quite yet, but Im glad that were at least getting a head start on what might be a long process.

 

Hello. June 9, 2008

Filed under: Uncategorized — tocommittomemory @ 6:31 pm
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So lately Ive taken up the hobby of blog-reading.  I love them.  Its like reading a good book, but you can go back and check on the characters from time to time.  I started with alittlepregnant (found by googling TTC blog), moved to Julia, and then to flotsam.  I start at the beginning, and read voraciously until I catch up to current events, adding them to my bookmarked daily check list.

Obviously, Im attracted to the blogs of women who are trying to conceive after an infertility diagnosis.  My husband and I will soon be trying to get pregnant and so I thought, why not add another voice to the already packed world of fertility blogs?

How about a little game of 40 Things?

  1. My name is Amanda.
  2. Im 27.
  3. I was born in Japan.
  4. I am not Japanese.
  5. My brother was born in Germany.
  6. He is not German.
  7. My brother and I are 8 years apart.
  8. My parents have been married for 30 years.
  9. My Dad was in the Air Force for 20 years.
  10. From preschool to college, I attended 12 different schools.
  11. My first job was at McDonalds.
  12. It sucked.
  13. I studied English for 4 years at a state school.
  14. I never got my degree.
  15. My husbands name is Paul.
  16. I met him in June 2003.
  17. We got married September 15, 2007.
  18. My brother was my Man of Honor.
  19. I live in New England.
  20. I work at a printing company.
  21. We print magazines and medical journals.
  22. Im in customer service.
  23. Ive always worked in customer service.
  24. I hate customers.
  25. In fact, I cant stand most people.
  26. Except babies.
  27. I love babies.
  28. I think I got baby fever when I started puberty.
  29. Ive been pregnant once, in college.
  30. Ive miscarried once, at 6 weeks.
  31. Ive been off birth control since December.
  32. Ive ovulated once since January.
  33. Paul and I will start trying in September.
  34. Paul doesnt really care for babies.
  35. Paul loves kids, though.
  36. He thinks the world is overpopulated.
  37. He thinks each couple should only have 1 or 2 kids (if any at all).
  38. Id love to have 4 kids.
  39. Weve settled on 2 (hopefully).
  40. My biggest fear is infertility.